🔧 Dev Preview — Instrument Build In Progress
NROS-P
NeuroRecovery Outcome Scale: Pediatric | v1.0-dev | Beacon Clinical Research
PANS / PANDAS Caregiver Outcome Instrument
NROS-P is a caregiver-reported outcome tool for tracking symptom burden and treatment response in children with PANS, PANDAS, and related inflammatory brain disorders. Built on the validated PTEC framework (Vyshedskiy et al., 2025 — 101 items, Cronbach's α = 0.96) with BeaconCR longitudinal research enhancements.
I. Behavior / Mood
II. OCD
III. Anxiety
IV. Food Intake
V. Tics
VI. Cognitive / Dev
VII. Sensory
VIII. Other
IX. Sleep
X. Health
Build Status
InstrumentBuilding — 101 items / 10 subscales
Registration gatewayPending
Flare status gatePending
Safety flags + 988 promptPending
Caregiver burden co-scalePending
Admin notification portalPending
Backend / HIPAA hardeningArchitecture complete — build queued
RepoBeaconCR-Tanno/nros-p-instrument
Target URLnros-p-dev.beaconcr.com